Utilization of alternative and augmentative communication resources by patients with amyotrophic lateral sclerosis.

Authors

  • Micaele Kedma Ribeiro de Moraes
  • Vagner Rogério dos Santos
  • Francis Meire Fávero
  • Acary Souza Bulle Oliveira
  • Lucimar Pinheiro Rosseto
  • Kelly Cristina Borges Tacon
  • Viviane Lemos Silva Fernandes
  • Samara Lamounier Santana Parreira

DOI:

https://doi.org/10.17784/mtprehabjournal.2019.17.723

Abstract

Introduction: Amyotrophic Lateral Sclerosis (ALS) is a multisystemic impairment disease, among them, the total loss of communicative abilities. Augmentative and Alternative Communication (CAA) seeks to provide effective communication through specific resources. Objective: To verify the influence of ALS on aspects of personal, social and environmental life in patients who use the CAA. Methods: This is a qualitative, exploratory, longitudinal research of a series of cases. The patients with ALS were invited to participate of an evaluation with a sociodemographic and semi-structured questionnaire. Each participant obtained a CAA resource offered by the present research and returned for a reevaluation. Results: The analysis based on the reports that emerged from the spontaneous comments and generated five categories (socialization, social attitudes, communication and rights, services, systems and policies, and family interaction). Conclusion: Even with the use of CAA, ELA generates negative impacts on socialization and social participation due to social and environmental factors.

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Published

2019-12-03

How to Cite

Moraes, M. K. R. de, Santos, V. R. dos, Fávero, F. M., Oliveira, A. S. B., Rosseto, L. P., Tacon, K. C. B., Fernandes, V. L. S., & Parreira, S. L. S. (2019). Utilization of alternative and augmentative communication resources by patients with amyotrophic lateral sclerosis. Manual Therapy, Posturology & Rehabilitation Journal, 1–12. https://doi.org/10.17784/mtprehabjournal.2019.17.723

Issue

Section

Research articles