Manual Therapy, Posturology & Rehabilitation Journal
http://mtprehabjournal.com/article/doi/10.17784/mtprehabjournal.2014.12.201
Manual Therapy, Posturology & Rehabilitation Journal
Review

Assessing the impact of urinary incontinence on quality of life: systematic review of instruments in Portuguese.

Wolpe, Raquel Eleine; Toriy, Ariana Machado; Silveira, Gabriella Franzoni da; Cardoso, Fernando Luiz; Sperandio, Fabiana Flores

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Abstract

Introduction: Urinary incontinence (UI) can have a large impact on quality of life (QOL), which can harm social, economic, psychological and sexual aspects. Instruments are used to assess such damages. As it comes to subjective information, questionnaires are suitable tools to measure these variables. OBJECTIVE: To identify the instruments used to assess the impact of urinary incontinence on quality of life and evaluate them regarding the psychometric properties. METHOD: A search for articles that used specific questionnaires to assess the impact of urinary incontinence on QOL was conducted using the following descriptors: urinary incontinence, questionnaire, quality of life, in English, Portuguese and Spanish in the following databases: PubMed, SciELO and Scopus, then the validation of questionnaires in Portuguese (Brazil) to classify them as to the process of cross-cultural adaptation and psychometric properties. RESULTS: Seven questionnaires were found: International Consultation on Incontinence Questionnaire - Short Form (ICIQ-SF), International Consultation on Incontinence Questionnaire - Overactive Bladder (ICIQ-OAB), Overactive Bladder Questionnaires (OAB-q), OAB-q generated the short form (OAB-q SF), Urinary Incontinence - Specific Quality of Life Instrument (I-QOL), King’s Health Questionnaire (KHQ) and Qualiveen. Only KHQ, ICIQ-SF and ICIQ-OAB followed all the steps of cultural adaptation. ICIQ-OAB and I-QOL showed higher number of assessed and certified psychometric properties. None of the studies showed results on responsiveness, “floor or ceiling” effects and interpretability. CONCLUSION: The data collected in this review showed that the instrumentation of UI is being made incomplete and is not respecting the prerequisite of the completion of steps in the process of creation and testing, possibly compromising an effective assessment of quality of life.

Keywords

urinary incontinence, quality of life, questionnaires, validation studies.

References

1. de Oliveira LD, Guirardello Ede B, Lopes MH. The translation and adaptation of the Gaudenz-Fragebogen to the Brazilian culture. Rev Esc de Enferm USP. 2012;46(3):565-72.

2. Tamanini JT, D’Ancona CA, Botega NJ, Rodrigues Netto N, Jr. Validation of the Portuguese version of the King’s Health Questionnaire for urinary incontinent women. Rev Saúde Pública. 2003;37(2):203-11.

3. Gomes LP, Ribeiro RM, Baracat EC. Non-surgical treatment of stress urinary incontinence: review sistemátic. FEMINA. 2010;38(7).

4. Pereira VS, Santos JYC, Correia GN, Driusso P. Translation and validation into Portuguese of a questionnaire to assess the severity of urinary incontinence. Rev Bras Ginecol Obstet. 2011;33(4):182-7.

5. Constitution of the World Health Organization. American journal of public health and the nation’s health. 1946;36(11):1315-23.

6. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41(10):1403-9.

7. Indrekvam S, Fosse OA, Hunskaar S. A Norwegian national cohort of 3198 women treated with home-managed electrical stimulation for urinary incontinence--demography and medical history. Scand J Urol Nephrol. 2001;35(1):26-31.

8. Matza LS, Zyczynski TM, Bavendam T. A review of quality-of-life questionnaires for urinary incontinence and overactive bladder: which ones to use and why? Curr Urol Rep. 2004;5(5):336-42.

9. Souza CC, Rodrigues AM, Ferreira CE, Fonseca ES, di Bella ZI, Girao MJ, et al. Portuguese validation of the Urinary Incontinence-Specific Quality-of-Life Instrument: I-QOL. Int Urogynecol J. 2009;20(10):1183-9.

10. Murphy M, Culligan PJ, Arce CM, Graham CA, Blackwell L, Heit MH. Construct validity of the incontinence severity index. Neurourol and Urodyn. 2006;25(5):418-23.

11. Barbosa LMA, Lós DB, da Silva IB, Anselmo CWSF. The effectiveness of biofeedback in treatment of women with stress urinary incontinence: a systematic review. Rev Bras Saude Mater Infant. 2011;11(3).

12. Fonseca ESM, Camargo ALM, Castro RA, Sartori MGF, Fonseca MCM, Rodrigues de Lima G, et al. Validation of the quality of life (King’s Health Questionnaire) in Brazilian women with urinary incontinence. Rev Bras Ginecol Obstet 2005;27(5):235-42.

13. Smith GL, Kobashi KC. Validated instruments in the evaluation and treatment outcomes of stress urinary incontinence in women. Curr Urol Rep. 2011;12(5):381-6.

14. Sandvik H, Hunskaar S, Seim A, Hermstad R, Vanvik A, Bratt H. Validation of a severity index in female urinary incontinence and its implementation in an epidemiological survey. J Epidemiol Community Health. 1993;47(6):497-9.

15. Paine P, Pasquali L, Paulo Ede S, Bianchi AL, Solha AC. Psychometric properties of the Brazilian Health Locus of Control Scale. Psychological reports. 1994;75(1 Pt 1):91-4.

16. Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J C Epidemiol. 2007;60(1):34-42.

17. Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of selfreport measures. Spine. 2000;25(24):3186-91.

18. Kelleher CJ, Cardozo LD, Khullar V, Salvatore S. A new questionnaire to assess the quality of life of urinary incontinent women. BJOG. 1997;104(12):1374-9.

19. Avery K, Donovan J, Peters TJ, Shaw C, Gotoh M, Abrams P. ICIQ: a brief and robust measure for evaluating the symptoms and impact of urinary incontinence. Neurourol and Urodyn. 2004;23(4):322-30.

20. Tamanini JT, Dambros M, D’Ancona CA, Palma PC, Rodrigues Netto N, Jr. Validation of the “International Consultation on Incontinence Questionnaire -- Short Form” (ICIQ-SF) for Portuguese. Rev Saúde Pública. 2004;38(3):438-44.

21. Pereira SB, Thiel Rdo R, Riccetto C, Silva JM, Pereira LC, Herrmann V, et al. Validation of the International Consultation on Incontinence Questionnaire Overactive Bladder (ICIQ-OAB) for Portuguese. Rev Bras Ginecol Obstet. 2010;32(6):273-8.

22. Patrick DL, Martin ML, Bushnell DM, Yalcin I, Wagner TH, Buesching DP. Quality of life of women with urinary incontinence: further development of the incontinence quality of life instrument (I-QOL). Urology. 1999;53(1):71-6.

23. Coyne K, Revicki D, Hunt T, Corey R, Stewart W, Bentkover J, et al. Psychometric validation of an overactive bladder symptom and health-related quality of life questionnaire: the OAB-q. Qual Life Res. 2002;11(6):563-74.

24. Coyne KS, Payne C, Bhattacharyya SK, Revicki DA, Thompson C, Corey R, et al. The impact of urinary urgency and frequency on health-related quality of life in overactive bladder: results from a national community survey. Value Health. 2004;7(4):455-63.

25. Nojomi M, Bijari B, Akhbari R, Kashanian M. The Assessment of Reliability and Validity of Persian Version of the Endometriosis Health Profile (EHP-30). Iran J Med Sci. 2011;36(2):84-9.

26. Costa P, Perrouin-Verbe B, Colvez A, Didier J, Marquis P, Marrel A, et al. Quality of life in spinal cord injury patients with urinary difficulties. Development and validation of qualiveen. European urology. 2001;39(1):107-13.

27. D’Ancona CA, Tamanini JT, Botega N, Lavoura N, Ferreira R, Leitao V, et al. Quality of life of neurogenic patients: translation and validation of the Portuguese version of Qualiveen. Int Urol Nephrol. 2009;41(1):29-33.

28. AD Lopes, SP Stadniky, D Masiero, EF Carrera , RM Ciconelli , Griffin S. Traducao and cultural adaptation of WORC: a survey of quality of life for rotator cuff disorders. Rev Bras Fisioter 2006;10(3):309-15.

29. Jia SZ, Leng JH, Sun PR, Lang JH. Translation and psychometric evaluation of the simplified Chinese-version Endometriosis Health Profile-30. Hum Reprod. 2013;28(3):691-7.

30. Deal LS, Williams VS, DiBenedetti DB, Fehnel SE. Development and psychometric evaluation of the Endometriosis Treatment Satisfaction Questionnaire. Qual Life Res. 2010;19(6):899-905.

31. Wagner TH, Patrick DL, Bavendam TG, Martin ML, Buesching DP. Quality of life of persons with urinary incontinence: development of a new measure. Urology. 1996;47(1):67-71.

32. Bjelic-Radisic V, Dorfer M, Tamussino K, Greimel E. Psychometric properties and validation of the German-language King’s Health Questionnaire in women with stress urinary incontinence. Neurourol and Urodyn. 2005;24(1):63-8.

33. Romero-Culleres G, Sanchez-Raya J, Conejero-Sugranes J, Gonzalez-Viejo MA. Validation of the Spanish version of the King’s Health questionnaire for evaluating quality of life related to urinary incontinence in patients with spinal cord injury. Med Clin. 2011;137(11):491-4.

34. Akkoc Y, Karapolat H, Eyigor S, Yesil H, Yuceyar N. Quality of life in multiple sclerosis patients with urinary disorders: reliability and validity of the Turkish version of King’s Health Questionnaire. Neurol Sci. 2011;32(3):417-21.

35. Kochakarn W, Pummangura N, Kijvikai K, Viseshsindh W, Sukying C, Lertsithichai P. Reliability of a Thai version of King’s Health Questionnaire in Thai females with overactive bladder symptoms. J Med Assoc Thai. 2005;88(11):1526-34. Epub 2006/02/14.

36. Busquets CM, Serra TR. Validation of a Spanish version of the International Consultation on Incontinence Questionnaire Short-Form. Rev Med Chil. 2012;140(3):340-6.

37. Stavros A, Themistoklis G, Niki K, George G, Aristidis A. The validation of international consultation on incontinence questionnaires in the Greek language. Neurourol and Urodyn. 2012;31(7):1141-4.

38. Chang SR, Chen KH, Chang TC, Lin HH. A Taiwanese version of the International Consultation on Incontinence Questionnaire--Urinary Incontinence Short Form for pregnant women: instrument validation. J Clin Nurs. 2011;20(5-6):714-22.

39. Gotoh M, Homma Y, Funahashi Y, Matsukawa Y, Kato M. Psychometric validation of the Japanese version of the International Consultation on Incontinence Questionnaire-Short Form. Int J Urol. 2009;16(3):303-6.

40. McKown S, Abraham L, Coyne K, Gawlicki M, Piault E, Vats V. Linguistic validation of the N-QOL (ICIQ), OAB-q (ICIQ), PPBC, OAB-S and ICIQ-MLUTSsex questionnaires in 16 languages. Int J Clin Pract. 2010;64(12):1643-52.

41. Nojomi M, Baharvand P, Moradi Lakeh M, Patrick DL. Incontinence quality of life questionnaire (I-QOL): translation and validation study of the Iranian version. Inter Urogynecol J. 2009;20(5):575-9.

42. Bushnell DM, Martin ML, Summers KH, Svihra J, Lionis C, Patrick DL. Quality of life of women with urinary incontinence: cross-cultural performance of 15 language versions of the I-QOL. Qual Life Res. 2005;14(8):1901-13.

43. Acquadro C, Kopp Z, Coyne KS, Corcos J, Tubaro A, Choo MS, et al. Translating overactive bladder questionnaires in 14 languages. Urology. 2006;67(3):536-40.

44. Pannek J, Mark R, Stohrer M, Schurch B. Quality of life in German-speaking patients with spinal cord injuries and bladder dysfunctions. Validation of the German version of the Qualiveen questionnaire. Der Urologe Ausg A. 2007;46(10):1416-21.

45. Bonniaud V, Parratte B. Cross-cultural adaptation of health-related quality of life questionnaire: English version of Qualiveen abstract. Ann Readapt Med Phys. 2006;49(3):92-9.

46. Ciudin A, Franco A, Diaconu MG, Peri L, Vivas V, Gonzalez MA, et al. Quality of life of multiple sclerosis patients: translation and validation of the Spanish version of Qualiveen. Neurourol and Urodyn. 2012;31(4):517-20.

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